References and Resources
Suggested by Paul Berger
Stroke survivors can use the Internet—I do!
There are many resources, products, references and tools available to help you regain your life and achieve your goals. Click here for reviews of the products and books I use everyday. Click here to learn about screen reader software and the accessibility features of our website. Here are the stroke & aphasia association websites I visit often.
Stroke & Aphasia Associations
www.aphasia.org The National Aphasia Association is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
www.americanheart.org The American Stroke Association is the division of the American Heart Association focused on reducing disability and death from stroke through research, education, and advocacy.
www.aphasiahope.org/ The Aphasia Hope Foundation is a non-profit foundation that promotes research into the prevention and cure of aphasia, and promotes awareness of available treatments.
www.stroke.org The National Stroke Association provides information for survivors & professionals.
www.strokecenter.org/about.htm The Internet Stroke Center is a non-profit, educational service of the Stroke Center at Barnes-Jewish Hospital, Washington University Medical Center and the Cerebrovascular Diseases Section of the Department of Neurology at Washington University School of Medicine in St. Louis. The Internet Stroke Center exists to advance understanding of stroke research and clinical care. Our goal is to provide current, professional, un-biased information about stroke. The information on this site is obtained from published accounts, meeting presentations, internet searches, and direct correspondence.
www.Dana.org The DANA Foundation provides information about brain research, including strokes and brain injuries, and more than 25 other brain conditions, with links to resources, researchers, and publications. The DANA Press offers books and free publications, and sponsors the annual Brain Awareness Week in March.
http://www.strokecenter.org/trials Stroke Trials Registry, a continuously updated registry of randomized clinical trials in stroke and cerebrovascular disease.
www.easterseals.com/site/PageServer Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years.
http://aphasiatoolbox.com/index.php You have discovered the premiere aphasia recovery self-help website for people who want to talk again
http://www.strokesafe.org/ SAFE (Stroke Awareness for Everyone, Inc.) is an international Internet-centered coalition of stroke survivors and their families, in addition to doctors, nurses and therapists involved with stroke.
http://www.strokenetwork.org/ Since 1996 we have provided on-line stroke support and information to well over 250,000 visitors to the site
http://stroke.nih.gov/ The NINDS began developing the Know Stroke campaign to help educate the public about the symptoms of stroke and the importance of getting to the hospital quickly
http://www.aphasianyc.org/ To empower people who are affected by aphasia to access and negotiate the services and opportunities they need for a better life.
.http://www.chasa.org/ Welcome to the Children's Hemiplegia and Stroke Association, CHASA, the first non-profit organization in North America to offer information and support to families of infants, children, and young adults who have hemiplegia or hemiplegic cerebral palsy
http://www.hearthub.org/hc-stroke.htm A new Web site for heart and stroke patients and their families and caregivers to find lifesaving information is www.HeartHub.org, and stocked with tools, resources, and information on an array of heart conditions.
http://www.ukconnect.org/index.aspx Connect is a charity for people living with aphasia, a communication disability which usually occurs after stroke.We aim to improve the lives of people living with aphasia and communication disability, equipping them to re-connect with life.
http://www.who.int/cardiovascular_diseases/resources/atlas/en/ World Health Organization has produced for the wider audience, "The Atlas of Heart Disease and Stroke".The atlas addresses the global epidemic of heart disease and stroke in a clear and accessible format.
http://aphasiaworld.blogspot.com/- Aphasia World.
http://aphasiacorner.com/blog/ On this blog we will periodically publish information that's relevant to people with aphasia, caregivers, and speech therapists.Aphasia Corner will be an online service for people affected by aphasia.
http://www.bafound.org/ The Brain Aneurysm Foundation developed from a close relationship between patients and healthcare professionals who identified the need for comprehensive information and support for brain aneurysm patients, their families, and the medical community.
http://www.canadianstrokenetwork.ca/ The Canadian Stroke Network’s mission is to reduce the impact of stroke on Canadians through collaborations that create valuable new knowledge in stroke; to ensure the best knowledge is applied; and to build Canadian capacity in stroke.
http://www.aphasia.org.au/aphasia/ The Australian Aphasia Association (AAA) is a support and advocacy association for people with aphasia, their families and the professionals who help them.
Aphasia.Recovery.Connection@groups.facebook.com The Aphasia Recovery Connection is supported by Christine Huggins and David Dow. This site is designed for people with aphasia, their friends, their families and professionals.
http://www.stroke.org.nz/home The Stroke Foundation is the only organisation in New Zealand dedicated to reducing the incidence of stroke, improving treatment outcomes, and supporting those affected by stroke.
http://www.stroke.org.uk/ Stroke Association is the leading charity in the UK changing the world for people affected by stroke.
http://www.chss.org.uk/ Chest Heart & Stroke Scotland improves the quality of life for people in Scotland affected by chest, heart and stroke illness, through medical research, influencing public policy, advice and information and support in the community.
http://www.neeman.org.il/index.aspx?id=2828 The Neeman Association for Stroke Survivors was established in the Greater Haifa Area in 1996 by a group of patients and their families with the purpose of providing a response to the unique needs of stroke victims and their families
http://www.shrs.uq.edu.au/ccre-aphasia-rehab or www.ccreaphasia.org.au/ -The major outcome from research within the Clinical Centre for Research Excellence (CCRE) will be the development of the Australian Aphasia Clinical Pathway in close collaboration with speech pathologists and consumers.
http://www.aphasiaunited.org/Home.aspx The need for an overarching aphasia organisation grew from the realisation that there was a lack of integrated international strategy for the advancement of aphasia science and services. Aphasia United was developed to drive change by uniting the global aphasia community through a strategic plan and shared vision.
http://www.strokebelt.org/ The Stroke Belt Consortium (SBC) represents all types of health care providers, including physicians, NPs/PAs, therapists, pharmacists, and others in academic, private practice, or industry. Our goal is to bring together the key leaders from these various groups to tackle and solve some of the major issues related to stroke care, treatment, prevention, and education as it affects the Stroke Belt region and its citizens.
http://youngstroke.org/ YoungStroke is an American advocacy organization formed to specifically address the unmet needs of young adult stroke survivors and their caregivers. We support our mission through research and education, to change the way others view stroke.
https://strokefoundation.com.au/ The Stroke Foundation is Australian not-for-profit organisation working across the stroke journey, supporting stroke survivors, carers, health professionals, governments and the public to reduce the impact of stroke on the Australian community.