Stroke Survivor

A stroke survivor dedicated to helping people with disabilities live full lives.

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HOUSE JOINT RESOLUTION NO. 561
Commending Paul Berger
.

 Paul Named Virginia Advocate of the Year
AHA's "You're the Cure" Honor
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Stephanie receives Fairfax Caregiver
Award

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Stephanie blogs for Disruptive Women in Healthcare

References and Resources
 Suggested by Paul Berger

Stroke survivors can use the Internet—I do!

There are many resources, products, references and tools available to help you regain your life and achieve your goals.  Click here for reviews of the products and books I use everyday. Click here to learn about screen reader software and the accessibility features of our website. Here are the government websites I visit often.

Government

MedlinePlus is my favorite: a free online Stroke center with news, background info, and access to professional research articles
www.nlm.nih.gov/medlineplus/stroke.htm

www.nlm.nih.gov/medlineplus/aphasia.html

www.nlm.nih.gov/medlineplus/paralysis.html

Stroke Rehabilitation (Patient Education Institute) - Requires Flash Player.

www.cdc.gov  The federal Center for Disease Control & Prevention has stroke info & grants to states for tracking data.

http://www.disability.gov, Disability.gov is a federal government Web site that provides access to comprehensive information about disability-related programs and services. The site contains thousands of reliable, trusted resources from the federal government, educational institutions, non-profit organizations and state and local governments. Disability.gov helps visitors quickly access the information they need and connect with others on disability-related topics.

http://crisp.cit.nih.gov  CRISP (Computer Retrieval of Information on Scientific Projects) is a searchable database of federally funded biomedical research projects conducted at universities, hospitals, and other research institutions. The database, maintained by the Office of Extramural Research at the National Institutes of Health, includes projects funded by the National Institutes of Health (NIH), Food and Drug Administration (FDA), Centers for Disease Control and Prevention (CDC), and others. Users, including the public, can use the CRISP interface to search for scientific concepts, emerging trends and techniques, or identify specific projects and/or investigators

www.ncd.gov The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families.

http://www.clinicaltrials.gov/ct ClinicalTrials.gov, an online source for information about medical research on human subjects, with details on the purpose of the study,who may participate, locations, and contacts.

http://www.cdc.gov/DHDSP/library/stroke_hospitalization_atlas.htm The Atlas of Stroke Hospitalizations among Medicare Beneficiaries is the fifth in a series of CDC atlases.

http://www.aoa.gov Administration on Aging’s site is designed to provide a comprehensive overview of a wide variety of topics, programs and services related to aging.

http://www.health.gov/paguidelines/guidelines/summary.aspx Being physically active is one of the most important steps that Americans of all ages can take to improve their health. The 2008 Physical Activity Guidelines for Americans provides science-based guidance to help Americans aged 6 and older improve their health through appropriate physical activity.

http://www.loc.gov/nls/aboutsite.html The mission of this web site is to provide program users, librarians, and the public a wide range of access to NLS publications, program information, and bibliographic data.Through a national network of cooperating libraries, NLS administers a free library program of braille and audio materials circulated to eligible borrowers

http://www.longtermcare.gov/LTC/Main_Site/index.aspx This web site was developed by the U.S. Department of Health and Human Services to provide information and resources to help you and your family plan for future long-term care (LTC) needs.

http://www.ahrq.gov/ Agency for Healthcare Research and Quality  is the lead agency charged with supporting research designed to improve the quality of health care, reduce its cost, and broaden access to essential services.

http://www.ninr.nih.gov/ We are dedicated to improving the health and health care of Americans through the funding of nursing research and research training. Among those areas of research are chronic and acute diseases, health promotion and maintenance, symptom management, health disparities, caregiving, self-management, and the end of life care.

http://www.ssa.gov/ All peoples throughout all of human history have faced the uncertainties brought on by unemployment, illness, disability, death and old age. In the realm of economics, these inevitable facets of life are said to be threats to one's economic security. The Social Security Amendments of 1954 initiated a disability insurance program which provided the public with additional coverage against economi insecurity.

http://www.healthfinder.gov/prevention/ViewTopic.aspx?topicId=81 Reduce Your Risk of Stroke: This information on preventing stroke is adapted from materials from the National Institute of Neurological Disorders and Stroke and the National Heart, Lung and Blood Institute

http://www.disability.gov/ Disability.gov is an award-winning federal Web site that contains disability-related resources on programs, services, laws and regulations to help people with disabilities lead full, independent lives.

http://nihseniorhealth.gov/exerciseforolderadults/toc.html Older adults who are interested in becoming physically active, restarting a lapsed exercise regimen or getting more benefit from their current exercise program can check out the updated Exercise and Physical Activity for Older Adults

http://www.healthcare.gov/ Official U.S. government site provides ongoing news and information about health care reform. Includes factchecking, videos, reports, forums and newsroom.

http://www.medicare.gov/caregivers/ Find Caregiver Support Resources here. Medicare is creating  the definitive resource for caregivers. Get financial help, read caregiver stories.

http://www.dol.gov/dol/topic/disability/index.htm The Department of Labor's Office of Disability Employment Policy (ODEP) seeks to increase employment opportunities for people with disabilities by expanding access to training, education, employment supports, assistive technology, integrated employment, entrepreneurial development, and small-business opportunities.

http://www.nidcd.nih.gov/ The National Institute on Deafness and Other Communication Disorders is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language.

http://go4life.niapublications.org/ Go4Life, an exercise and physical activity campaign from the National Institute on Aging at NIH, is designed to help you fit exercise and physical activity into your daily life.

http://www.choosemyplate.gov/ The Center for Nutrition Policy and Promotion, to improve the nutrition and well-being of Americans. The Center's core projects under the USDA Food Guidance System are: MyPlate, MyPyramid, Food Guide Pyramid.

http://www.cdc.gov/salt/ Most of the sodium we consume is in the form of salt, and the vast majority of sodium we consume is in processed and restaurant foods.

http://www.cnpp.usda.gov/Publications/NutritionInsights/Insight16.pdf
Body Mass Index and Health-Body-Mass Index (BMI) is one of the commonly used measures of obesity. BMI is a ratio of a person’s weight to height. BMI is commonly used to classify weight as “healthy” or “unhealthy.” 

https://www.healthcare.gov/ The Affordable Care Act puts consumers back in charge of their health care. Under the law, a new “Patient’s Bill of Rights” gives the American people the stability and flexibility they need to make informed choices about their health.

http://www.healthypeople.gov/Healthy People 2020 is the result of a multiyear process that reflects input from a diverse group of individuals and organizations. A society in which all people live long, healthy lives.

Stroke Survivor

info@strokesurvivor.com

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You are marvels!  I just read the newsletter ... and it is simply priceless (I always read them, and they are all noteworthy, but this one is beyond good.)  Paul, your book is in my book as something that all clinicians should have, read, pass on (ie, make them buy) to their clients.
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I came across your website today and just wanted to congratulate you on providing a helpful resource for stroke survivors and healthcare professionals.
     -Marisca Baldwin, The Pat Arato Aphasia Centre, Toronto,,Canada

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